Friday, 4 May 2018

One Year On...

The 4th May will always be a date I will remember. Not because of its Star Wars connection, but because it's the first anniversary of Zach's Cystic Fibrosis Diagnosis.

I can't believe it was a year ago today, we were sitting in a consultation room at Great Ormond Street hospital. Both my husband Jon and I were completely heartbroken, confused and a little bit in disbelief. The previous afternoon I had gotten a phone call by the lovely specialist nurse, whom we would become to know really well in months to come. Zach's heel prick test results had come through and he had suspected Cystic Fibrosis.

Everything from then on moved in slow motion, i was beside myself. I think I cried non stop for two weeks after. Angry at the world and questioning, why me? Why us? it's not fair. On top of that I couldn't help but think about my sons death, his funeral, life after Zach which caused me a lot of grief and stress. 

All of these feelings are completely normal. When we were told about Zach I remember the team telling us it will become easier and in a years time you will look back and think you're right. At the time I was thinking how can you say that? I'm going feel devisated for the rest of my life.

It's now 1 year on and I can honestly say they were right. Yes I still get a little teary every now and again but that's normal. Zach has just had his annual review and everything is perfect at the moment. He only needed stronger antibiotics three times in the past year, due to a bug growing on his lungs because he had a cold. But no hospital admintions, no crackling in his lungs and no mucus. 

We are very fortunate and extremely greatful that Zach is on the good end of the scale. Others have a much harder and difficult start to life, being in hospital for months after birth and constantly afterwards.

It has been a tough year learning about Cystic Fibrosis and giving Zach his medications twice a day and his creon micro with every meal so his body can deal with fats and proteins. 

Myself and my husband are doing our first fundraiser and fundraising for the CFtrust and trekking 65km in under 17 hours across the Peak District in July. If you would like to read more of our story and or sponsor us then you can do so here -

I have more info on Cystic Fibrosis in my post here -

If you have any questions about CF or you know someone who would benefit from this post than please share and or message me.

Jenni x


Thursday, 3 May 2018

I'm Returning

Hello my lovelys,

It has been a hot minute since I last blogged, back in July. I made the conscious decision to take a back seat with my blog and social media. 

I had just become a first time mummy to little Zach (not so little anymore), on top of that he was diagnosed with cystic fibrosis. Which knocked me for six and in return I became really poorly over the stress of it all. I needed rest and to concentrate on my health as well as Zach's. 

I knew I would come back to blogging one day. And so here I am.

What can you expect from my blog?

Everything really. I will be posting a lot about Cystic Fibrosis as it's something that is now very close to my heart and not many people know much about it. I will be documenting Zach's journey and how it effects him and us as a family.

I will be writing lifestyle and travel posts. As well as monthly favourites.

Now that Zach is one! (Wait, what?). He has shown a lot of interest in Disney. The past month I set up a Disney related insta account( disneymummy_ ). Which you can see on my blog home page. It's something that has helped me mentally cope with everything and makes me and my little boy happy.
So expect Disney related posts.

I am so happy I have found it in myself to return to something I love doing. I also hope you join me along for this bumpy ride too.

See you soon

Jenni x

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